Doesn't involve any hacking, sneaking or listening in on other people's conversations. But there's a lot to share!
We are feeling increasingly more pleased with our decision to switch to Kaiser. We met the girls' pediatrician last week and Mad's neurologist today. Every medical professional we've encountered greets us and then tells us why we're there. Because they've read our file. Doc walked in this morning and said, "So you're here about the incident in April."
Yes, that was my jaw hitting the floor.
Moreover, he really listened to what we were saying. We discussed Mad's fall in 2009. Unlike the neuro we met back then, at no time did our new doc try to insist that Mad had a seizure and then fell. He listened. We laid out everything.
Two women in Tom's family have a history of seizures. Teen onset, lasting through early adulthood.
Mad fell. Knocked herself out. Came to. Went out again. Had an EEG that showed some minor activity that our old ped, Dr. Present, said could result in a seizure disorder later or could be nothing.
At the birthday party in April, Mad was extremely excited. By the singing. Her first candle to blow out. The frog cupcake. The ice cream that she was eating way too fast.
She seemed to have a brain freeze followed by a seizure. But she came to and was her normal self (albeit upset) in a matter of seconds.
What did all of that mean to our new neurologist?
Mad fainted.
Apparently some people are susceptible to vasovagal episodes. And do you know what can cause them? I am not joking when I say being excited and eating something cold.
Yes, that was me breathing a huge sigh of relief.
Fortunately, Doc is going to redo the EEG to be on the safe side. Again unlike the previous neuro, New Doc does not advocate using heavy duty meds to prevent something that may or may not happen. So if it turns out she is at risk for developing seizures, we will wait to treat them if they show up.
He said Mad seems perfect. Developmentally appropriate. Smart. Pretty (he did say that, but not as part of his diagnosis).
So next up will be an EEG. Unlike two years ago, Mad isn't likely to fall asleep anywhere we put her (not that she did then), so she'll probably have to be put under for it. That's our least favorite part of the whole thing, but we'll take it to get the answers we need.
Showing posts with label Dr. Present. Show all posts
Showing posts with label Dr. Present. Show all posts
Wednesday, July 13, 2011
Thursday, June 30, 2011
Endings
My emotions have been a little too pendulous these days. The end of this month is bringing some huge changes.
This afternoon Fynnie had her last appointment with Dr. Present. We were hoping to get a vaccination in so she'd be caught up to our schedule before transferring. She'd been too sick with another of her recurrent nasty fevers in May and it threw us off.
Part of me wanted to bring all of the kids. And the camera. Or to leave photos of our kids behind. There is a wall of photos. It's something that had been started by the previous pediatrician, that Dr. Present and his wife continued. There are three photos of Corey up there. Preschool, kindergarten and, I think, second grade. No photos of the girls. They have never had any professional shots done. (*sigh* That's the downside of getting Tom to agree that I needed an expensive camera with a nice lens.) I haven't seen the wall updated in several years.
I forgot the camera this morning and decided not to go back for it because, well, I could see myself letting the emotions take over if I made too big of a deal about it.
Corey did not join us for the appointment, but Mad did. Having gone a couple of times where she didn't get a shot and she did get a sucker, there was none of thedrama tension of previous visits.
During the appointment, we had a list of questions we wanted answered. Some of them we know will have to be addressed with the new ped, but it was important to me that we have some way of judging his... worthiness, I guess.
No shot for Fynnie Girl as she, like all of us, is sick. Ear infections are popping up. Doc prescribed antibiotics today because he's closed Thursdays.
After all of our questions were answered and handmade chocolates from a local shop were given, it was time to go.
Dr. Present encouraged us to call him if we ever have any questions or if we need anything. His nurses did the same as we made our way to the door.
This new insurance better be damn good.
It's one thing to change insurance companies. But we are transferring to a completely different insurance model.
I went to get Fynn's prescription filled at our regular pharmacy. It's around the corner from where we used to live. In the store where we used to shop.
The pharmacy tech and the pharmacist and I have known each other since Corey was a baby. Heck, I would have sworn the pharmacy tech was just a baby when I met him (turns out he's almost my age... whatever). These are people who have filled prescription after prescription for Corey. They have a sense of what's gone on with him. They ask about him when he's not with me and they're kind to him when he is.
I was in that store at that pharmacy counter while in early labor with Madelyn.
These people are part of huge stories in my life. And now they are gone. From us. It's not like a meteor struck or something.
We'll have to go to different pharmacies now. Ones that are part of our new network. I'm sure the new people will be great. I'm sure we'll have other huge stories. But I like walking up to the counter and finding people who are happy to see me.
Does it seem like I'm overly emotional about pediatricians and nurses and pharmacy staff? Well wait, there's more.
On Tuesday Corey will be 18.
Every year around this time I have told him little stories about when I was pregnant with him. It's a tradition that he has been unaware of, loved, felt annoyed by but tolerated and then loved again. It's never been a "sit here and let me tell you" sort of deal. Just little thoughts thrown in here and there during general conversations. Since I can't seem to have any general sorts of conversations with him right now, I'm going to have them with you. Pull up a chair and pretend to be a surly teen so the illusion isn't broken.
"On this day in 1993, I woke up from a dream that I'd met you and knew you were a boy. It was kind of a creepy dream, involving a homeless woman and me shopping around for baby clothes. When we couldn't decide whether to buy for a boy or a girl, she removed you (harmlessly) from my belly. We tried on boy clothes and they looked fine. We tried on girl clothes and they looked great! But I still knew you were a boy. I also saw you around age seven, playing at a park (you looked nothing like yourself). I woke up and said out loud, "It's Cameron." Moments later my phone rang and your grammy called to tell me that Auntie Mary also just had a dream that you were a boy.
"Two Fridays before you were due, your great grandparents accompanied me to my appointment. I'm pretty sure it was Great Grandpa's first time at a prenatal appointment. They were loaded with camera equipment. I asked them not to take any pictures of my belly because those fiery stretch marks were embarrassing. I wish I had a recording of their faces and gasps and comments as they heard your heart beating. Even better would be a little clip of your generally stoic Great Grandpa leaning over my belly and firmly instructing you to be born on your Great Grandma's birthday (conveniently your due date), complete with finger pointing, a twinkle in his eye and a "you hear?"
"Exactly one week before your due date, your dad and I spent the day at a chili cook-off in our neighborhood. That afternoon we went out to the water (we lived in San Diego's Ocean Beach) and tossed a Frisbee back and forth. It made people nervous every time I went after the Frisbee. After a while I sat down and read while Stephen went out in the water. There was a 45 minute period where I couldn't find him out there. Mostly I tried to keep reading and acting nonchalant, but I was freaking out. I made a deal with god that I would name you the name you have if only Stephen were safe. You don't look like a Cameron anyway, but the funny thing is, if I hadn't made that deal, you wouldn't have your name. It took serious balls to give you that name. I wasn't even sure I believed in any god, but I wasn't reneging on my end of the bargain just in case.
"That same evening we headed to the hospital to pre-register. I remember looking at the line of cars still flooding our little piece of the peninsula and hoping we wouldn't have to go to the hospital when all the beach goers were usually heading home.
"The night before you were born, the moon was a crescent and it sat high in the sky over a brilliant star. For almost a decade, that continued to be true on your birthday, too."
This afternoon Fynnie had her last appointment with Dr. Present. We were hoping to get a vaccination in so she'd be caught up to our schedule before transferring. She'd been too sick with another of her recurrent nasty fevers in May and it threw us off.
Part of me wanted to bring all of the kids. And the camera. Or to leave photos of our kids behind. There is a wall of photos. It's something that had been started by the previous pediatrician, that Dr. Present and his wife continued. There are three photos of Corey up there. Preschool, kindergarten and, I think, second grade. No photos of the girls. They have never had any professional shots done. (*sigh* That's the downside of getting Tom to agree that I needed an expensive camera with a nice lens.) I haven't seen the wall updated in several years.
I forgot the camera this morning and decided not to go back for it because, well, I could see myself letting the emotions take over if I made too big of a deal about it.
Corey did not join us for the appointment, but Mad did. Having gone a couple of times where she didn't get a shot and she did get a sucker, there was none of the
During the appointment, we had a list of questions we wanted answered. Some of them we know will have to be addressed with the new ped, but it was important to me that we have some way of judging his... worthiness, I guess.
No shot for Fynnie Girl as she, like all of us, is sick. Ear infections are popping up. Doc prescribed antibiotics today because he's closed Thursdays.
After all of our questions were answered and handmade chocolates from a local shop were given, it was time to go.
Dr. Present encouraged us to call him if we ever have any questions or if we need anything. His nurses did the same as we made our way to the door.
This new insurance better be damn good.
It's one thing to change insurance companies. But we are transferring to a completely different insurance model.
I went to get Fynn's prescription filled at our regular pharmacy. It's around the corner from where we used to live. In the store where we used to shop.
The pharmacy tech and the pharmacist and I have known each other since Corey was a baby. Heck, I would have sworn the pharmacy tech was just a baby when I met him (turns out he's almost my age... whatever). These are people who have filled prescription after prescription for Corey. They have a sense of what's gone on with him. They ask about him when he's not with me and they're kind to him when he is.
I was in that store at that pharmacy counter while in early labor with Madelyn.
These people are part of huge stories in my life. And now they are gone. From us. It's not like a meteor struck or something.
We'll have to go to different pharmacies now. Ones that are part of our new network. I'm sure the new people will be great. I'm sure we'll have other huge stories. But I like walking up to the counter and finding people who are happy to see me.
Does it seem like I'm overly emotional about pediatricians and nurses and pharmacy staff? Well wait, there's more.
On Tuesday Corey will be 18.
Every year around this time I have told him little stories about when I was pregnant with him. It's a tradition that he has been unaware of, loved, felt annoyed by but tolerated and then loved again. It's never been a "sit here and let me tell you" sort of deal. Just little thoughts thrown in here and there during general conversations. Since I can't seem to have any general sorts of conversations with him right now, I'm going to have them with you. Pull up a chair and pretend to be a surly teen so the illusion isn't broken.
"On this day in 1993, I woke up from a dream that I'd met you and knew you were a boy. It was kind of a creepy dream, involving a homeless woman and me shopping around for baby clothes. When we couldn't decide whether to buy for a boy or a girl, she removed you (harmlessly) from my belly. We tried on boy clothes and they looked fine. We tried on girl clothes and they looked great! But I still knew you were a boy. I also saw you around age seven, playing at a park (you looked nothing like yourself). I woke up and said out loud, "It's Cameron." Moments later my phone rang and your grammy called to tell me that Auntie Mary also just had a dream that you were a boy.
"Two Fridays before you were due, your great grandparents accompanied me to my appointment. I'm pretty sure it was Great Grandpa's first time at a prenatal appointment. They were loaded with camera equipment. I asked them not to take any pictures of my belly because those fiery stretch marks were embarrassing. I wish I had a recording of their faces and gasps and comments as they heard your heart beating. Even better would be a little clip of your generally stoic Great Grandpa leaning over my belly and firmly instructing you to be born on your Great Grandma's birthday (conveniently your due date), complete with finger pointing, a twinkle in his eye and a "you hear?"
"Exactly one week before your due date, your dad and I spent the day at a chili cook-off in our neighborhood. That afternoon we went out to the water (we lived in San Diego's Ocean Beach) and tossed a Frisbee back and forth. It made people nervous every time I went after the Frisbee. After a while I sat down and read while Stephen went out in the water. There was a 45 minute period where I couldn't find him out there. Mostly I tried to keep reading and acting nonchalant, but I was freaking out. I made a deal with god that I would name you the name you have if only Stephen were safe. You don't look like a Cameron anyway, but the funny thing is, if I hadn't made that deal, you wouldn't have your name. It took serious balls to give you that name. I wasn't even sure I believed in any god, but I wasn't reneging on my end of the bargain just in case.
"That same evening we headed to the hospital to pre-register. I remember looking at the line of cars still flooding our little piece of the peninsula and hoping we wouldn't have to go to the hospital when all the beach goers were usually heading home.
"The night before you were born, the moon was a crescent and it sat high in the sky over a brilliant star. For almost a decade, that continued to be true on your birthday, too."
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