News of My World

Doesn't involve any hacking, sneaking or listening in on other people's conversations.  But there's a lot to share!

We are feeling increasingly more pleased with our decision to switch to Kaiser.  We met the girls' pediatrician last week and Mad's neurologist today. Every medical professional we've encountered greets us and then tells us why we're there.  Because they've read our file.  Doc walked in this morning and said, "So you're here about the incident in April."

Yes, that was my jaw hitting the floor.

Moreover, he really listened to what we were saying.  We discussed Mad's fall in 2009.  Unlike the neuro we met back then, at no time did our new doc try to insist that Mad had a seizure and then fell.  He listened.  We laid out everything.

Two women in Tom's family have a history of seizures.  Teen onset, lasting through early adulthood.

Mad fell.  Knocked herself out.  Came to.  Went out again.  Had an EEG that showed some minor activity that our old ped, Dr. Present, said could result in a seizure disorder later or could be nothing.

At the birthday party in April, Mad was extremely excited.  By the singing.  Her first candle to blow out.  The frog cupcake.  The ice cream that she was eating way too fast.

She seemed to have a brain freeze followed by a seizure.  But she came to and was her normal self (albeit upset) in a matter of seconds.

What did all of that mean to our new neurologist?

Mad fainted.

Apparently some people are susceptible to vasovagal episodes.  And do you know what can cause them?  I am not joking when I say being excited and eating something cold.

Yes, that was me breathing a huge sigh of relief.

Fortunately, Doc is going to redo the EEG to be on the safe side.  Again unlike the previous neuro, New Doc does not advocate using heavy duty meds to prevent something that may or may not happen.  So if it turns out she is at risk for developing seizures, we will wait to treat them if they show up.

He said Mad seems perfect.  Developmentally appropriate.  Smart.  Pretty (he did say that, but not as part of his diagnosis).

So next up will be an EEG.  Unlike two years ago, Mad isn't likely to fall asleep anywhere we put her (not that she did then), so she'll probably have to be put under for it.  That's our least favorite part of the whole thing, but we'll take it to get the answers we need.

Leaping

Last month was open enrollment at work.  If you wanted to change insurance plans, that was the time to do it.

I have had the same insurance for 15 years.  Corey has been with the same pediatrician 16 years (plus one year with the doctor who retired from there).  I love the pediatrician.  Love him.  And his wife, who was also Corey's pediatrician at one point.  And his staff, most of whom I've known since they were interns or fresh from training.

I really like my OB.  I guess since having my tubes tied, he's really just a GYN for me, but that's not how I think of him.  Naked hugs and differing views on prenatal testing, circumcision and vaccinations aside, that little old man never fails to make me smile when I see him.

I even like my general practitioner.  I don't care for his front office people, but he and his physician assistant have given very good care to me and all of my local parents.

Then why even contemplate switching?

Because it took three weeks to get a referral for Mad to see a neurologist after having what we're all pretty sure was a seizure at her birthday party.  When the pediatrician sent the request to our medical group, it was marked URGENT!  Maybe it was written in some special ink that only we could see, because it was only urgent to us.

When we did receive the referral, it had a doctor's name, but no contact information.  At all.

We asked our ped (Mad calls him Dr. Present) for help (we had an appointment with him the same day) and his assistant was able to track down the doctor.  We saw her fax the referral and Mad's file to the neuro's office, again marked URGENT!  But again, it was only urgent to us.  We were told to wait for someone to call us the next day to schedule the appointment.

When no call came, Tom called them.  They hadn't received the referral and wouldn't discuss anything until they received it.  They would call when they had it.

Dr. Present's office re-faxed it.

Again Tom had to call them.

They had everything, but it would take a week to review Mad's file.  It had already been a few days, so we should hear from them in a few more.  They wouldn't schedule an appointment during this call because May was booked solid.  So was June.  And it was too soon to start scheduling July.  They'd call us when they were ready.

At two other appointments (Fynn gets vaccinated monthly instead of the standard schedule, so we've been there a lot), Dr. Present had someone call and see if they could move things along.  They couldn't.

Despite all of this, we hemmed and hawed about switching.  This wasn't from one (sub)standard HMO to another; this was Blue Cross to Kaiser.  If you're not from these parts, Kaiser is a whole different insurance beast.

I was born at Kaiser.  Like a lot of stories about Kaiser from back in the day, my birth story often ends with "and yet we lived."

But the newer stories, say in the past five years, are overwhelmingly positive.  After questioning every Kaiser patient within our circle, we made the decision to switch.

I am going to miss Dr. Present and his staff tremendously.  Where else will I be able to walk in with Fynnie Fynn and have someone ask about Corey?

We are eight days from becoming Kaiser patients.  Corey and Madelyn need to be seen right away.  I called to see if I could get a jump on scheduling.

I could.

Mad will see her new pediatrician in twelve days and we should be able to leave with a referral to a neurologist   We probably won't get our initial consult with the Kaiser neuro as early as we would had we stayed with Blue Cross (yes, that's me rolling my eyes).  The Blue Cross neuro's office called last week and had an appointment available for the middle of July.  Yes, of this year.

Corey's needs will be met around the same time as Mad's.

I did lodge a grievance with Blue Cross.  This is my daughter's brain we're talking about here.  If something is really wrong, we should already be doing something about it, not playing power struggle games with egotistical neurology practices or slow moving medical groups.

After a few surprisingly simple and very helpful calls to Kaiser today, I'm feeling hopeful that this was the correct path for us.